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Digest
SB 1140 establishes the Texas Rare Disease Advisory Council to advise state agencies, the governor, and the legislature on issues affecting individuals with rare diseases. The council will include medical professionals, researchers, patient advocates, and individuals with rare diseases. It will provide recommendations on improving patient access to specialists, healthcare coverage, and diagnostic procedures while addressing disparities in care. The council will submit biennial reports with policy recommendations and legislative proposals to enhance healthcare services for rare disease patients in Texas​.
Author (1)
Borris Miles